April is Limb Loss and Limb Difference Awareness Month, a time dedicated to educating the public, sharing stories, and celebrating individuals. While there are many awareness days and campaigns throughout the year, this one is especially meaningful to us. Let’s take a closer look at its impact on both our team and our patients.

Showing That People with Limb Differences Can Thrive

For many people with a congenital upper limb difference, one of the biggest goals is to be seen as capable. Just because they may not look or function like a “typical” person does not mean they are any less capable. While the world may be built for people with two hands, people with a limb difference adapt in incredible ways, both with and without a prosthesis.

For people who have experienced limb loss, our Maple Grove, MN, center’s occupational therapist, Becky, tells patients, “This is the club you never expected to join.” While many of our patients would agree with that statement, many would also say that they would not necessarily change their experience because of who they have become and where they are in life today.

Gerry Patio
Our patient Gerry and the 1,800 brick patio he laid after his bilateral amputation.

Our patients often describe a wide range of public reactions. Sometimes our patients enjoy a “Woah, that’s cool!” when a stranger sees their prosthesis, whether it’s a body-powered finger or a more advanced myoelectric hand. Other times, our patients do not enjoy the whispering that takes place around them when someone notices their limb difference – in fact, whispering or staring can make that person feel uncomfortable and isolated. Most people with limb differences would prefer for other people to ask about their difference, or just move on and not say anything.

At the end of the day, a limb difference is only one aspect of a person and not something that needs commentary.

There are Many Ways of Living with a Limb Difference

One of our favorite things is when two (or more!) of our patients are able to connect and discuss their experiences, their prostheses, and their lives in general. Seeing someone else living fully with a similar limb difference can help normalize the experience, since it’s not something you see much in movies or on TV (though shout-out to Bridgerton actor Gracie McGonigal playing Hazel!). While our clinical teams have years of experience in creating functional, great-looking prostheses for our patients, peer connection offers a level of perspective and reassurance that cannot be replaced.

Awareness Can Drive Real Change

With the support of social media campaigns, billboards and more, meaningful change can happen. State legislatures can make new laws that allow for adaptive services like replacing doorknobs in public buildings with door levers, since those can be easier for people who use an upper limb prosthesis. Insurance providers can be made more aware of the need to provide coverage for upper limb prostheses because they can relieve overuse symptoms and allow people to pursue both their work and home goals. Doctors may realize that upper limb prostheses can really benefit their patients, both physically and mentally, and recommend them more frequently. Our patient Angie, pictured below, loves rock climbing. When she lost three fingers on her right hand in an accident, Angie's doctor said not to bother getting a prosthesis. But she loves her device and uses it to do all sorts of things, including climbing Via Ferrata in Colorado.

Angie 3

At its core, awareness helps create a more empathetic and inclusive society. Learning about how others move through the world and why they make the decisions that they do can benefit everyone. Bringing awareness to the limb different community can help us all be a bit more understanding of each other, our limitations, strengths, and passions.

To learn more about the holistic prosthetic care offered at our five centers around the US, please contact us. If you’d like to leave a comment on this article, we welcome those below.

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